Our story:

For Gil, it started in his teens: "I had pain in my legs and we didn\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\'t understand what it was, I went to orthopedists and they always said it was low muscle tone or excessive flexibility."

Only after many tests and many years of suffering, I finally received a diagnosis. He was diagnosed with CMT

For Ella, the delay in diagnosis caused her condition to deteriorate, at the age of 4 she had already undergone surgeries and cast treatments. Today she gets around with braces and has been assigned 80 percent mobility.

Many patients with CMT underwent inappropriate treatment and encountered a lack of experience and knowledge among the medical community.

Lack of knowledge is the main cause of the deterioration of the incurable genetic disease: CMT 

The CMT association works fully voluntarily to improve the quality of life of those diagnosed with the disease:

We have built a community that meets the need for knowledge sharing, community and support

We have established a website with accessible information

We promote research to treat the disease

We work to raise awareness in 3 directions:

Among a wide audience who do not know the symptoms

Among doctors who do not know the disease

In patients who are not aware of the existence of a supportive community